International Childrens Anophthalmia and Microphthalmia Network
c/o Center for Developmental Medicine and Genetics
5501 Old York Road
Genetics, Levy 2 West
Philadelphia, PA 19141
1-800-580-ican
www.anophthalmia.org
The International Children's Anophthalmia & Micropthalmia Network (ican), a voluntary not-for-profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia.
American College of Medical Genetics (ACMG)
9650 Rockville Pike
Bethesda, MD 20814-3998
www.acmg.net
Represents the medical genetics profession dedicated to making genetic services available to and improve the health of the public. Promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases. Offers a "Find a Geneticist" service.
American Society of Opthalmic Plastic and Reconstructive Surgery (ASOPRS)
5841 Cedar Lake Road, Suite 204
Minneapolis, MN 55416
(952) 646.2038
www.asoprs.org
Dedicated to advance training, education, research, and the quality of clinical practice in the fields of aesthetic plastic, and reconstrucive surgery specializing in the face, eyelids, orbits, and lacrimal system. Provides information on anophthalmos and obrital implants, blepharospasm, ptosis and other eyelid disorders, excessive tearing, and thyroid disease and the eye.
National Eye Institute
National Institutes of Health
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
(301) 496.5248
www.nei.nih.gov
Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients.
National Society of Genetic Counselors
401 N. Michigan Avenue
Chicago, IL 60611
(312) 321.6834
www.nsgc.org
Represents the genetic counseling profession. Provides information and support to families who have members with birth defects or genetic disorders and to families who may be at risk for a variety of inherited conditions. Offers a "Find a Counselor" service.
GeneReviews: Anophthalmia/Microphthalmia Overview
http://www.ncbi.nlm.nih.gov/sites/GeneTests/?db=GeneTests
American Society of Ocularists
www.ocularist.org
American Foundation for the Blind
www.afb.org
National Association for Parents of Children with Visual Impairments
www.spedex.com/napvi
Micro and Anophthalmic Childrens Society
www.macs.org.uk
National Federation of the Blind
www.nfb.org
American Printing House for the Blind
www.aph.org
Society Security Administration
www.ssa.gov/pubs/10052.html
Lions Club International
www.lionsclub.org
